Thursday, October 10, 2013

Narcolepsy-Focused Guides / Helpful Info

Narcolepsy-focused guides and helpful advisory pages. I'll add as and when I come across things of interest.

“Management of narcolepsy in adults” EFNS (European Federation of Neurological Societies) guidelines for treatment of narcolepsy (2011)  https://attachment.fbsbx.com/file_download.php?id=295757320560958&eid=ASv8PDgdwUKYdqV8iRNUxsy8a99otsjjfCBBZT593emLw6R__5UXK08JnHQbrEUWdoU&inline=1&ext=1376788703&hash=ASujj__iDfukF1P7



“Recognition and management of narcolepsy in children / adolescents” (1999) http://adc.bmj.com/content/81/6/519.full

“Narcolepsy - A Guide for Teachers”
* I had trouble posting the direct link for this, so it'll have to accessed through the narcolepsy education group. It's well worth reading, as its the best guide for teachers that I've come across. Starts off a little- keep reading, it gets better! *

"Guidance for schools and colleges"




The terrors of sleep paralysis” – 4 minute cartoon based information TED video http://ed.ted.com/lessons/the-terrors-of-sleep-paralysis-ami-angelowicz?ref=nf

Science Weekly podcast: the waking nightmare of sleep paralysis” http://www.theguardian.com/science/audio/2013/aug/05/podcast-science-weekly-sleep-paralysis

“The Spoon Theory” – helpful way for non-sufferers to understand exhaustion and its limitations. http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/

1 comment: