Petition - Stop denying access to medication for people with narcolepsy

The charity, Narcolepsy UK, has started a petition on Change entitled "Stop denying access to medication for people with narcolepsy". A subject that I feel incredibly strongly about. In the UK, pwn's have to apply to their local health boards for medications such as Xyrem, a drug that is first line treatment in other countries and for very good reasons. These applications are rarely successful, usually due to financial reasons. It took me two years and lots of fighting before I was granted xyrem 9 months ago. I was lucky, others are still fighting. Please consider signing and sharing. It could make a real difference to many pwn's in the UK.

*** SIGN HERE ***

Narcolepsy UK state that...

"Effective and approved medication (particularly modafinil and sodium oxybate) could be available for people with narcolepsy in the U.K. but many NHS Clinical Commissioning Groups across the country routinely "blacklist" or deny patients this medication they need by stating it is either [in their opinion]"not cost-effective" or by reference to the irrelevant consideration of how it is sometimes abused by people who don’t have narcolepsy.  

We believe the right to access effective medication is a fundamental human right. It should not be down to the judgement of either an accountant or a pharmacist in the NHS to deny an individual the right of access to treatment that could see them function in society as either a family member, work colleague or simply a friend to others. We believe that clinical doctors are in the best position to judge the most effective medication and in consultation with their patient, their recommendation as to medication should be given priority – not the decision of accountants and/or finance controllers of CCGs.fective and approved medication (particularly modafinil and sodium oxybate) could be available for people with narcolepsy in the U.K. but many NHS Clinical Commissioning Groups across the country routinely "blacklist" or deny patients this medication they need by stating it is either [in their opinion]"not cost-effective" or by reference to the irrelevant consideration of how it is sometimes abused by people who don’t have narcolepsy."